I was reading a blog written by Stephanie Snow Gebel who has a daughter with Wolfram syndrome. I was so moved. Stephanie created a non-profit organization to raise awareness and achieve a cure for Wolfram, and we have been working together since I moved to Washington University. I hope you read this. We need to develop novel therapeutics for Wolfram syndrome as soon as possible.
http://thesnowfoundation.org/day-life-wolfram-syndrome-mom/
