We have created an website specifically designed for Wolfram syndrome patients, families, physicians, and researchers. Our aim is to create the most useful and informative site and platform for patients with Wolfram syndrome. We plan to keep on adding information to this site.
http://wolframsyndrome.dom.wustl.edu/
Most of my previous blogs have been transferred to this site. I plan to move my blog there.
http://wolframsyndrome.dom.wustl.edu/dr-uranos-blog/
The site is managed by a wonderful information technology specialist. I cannot thank you enough for her efforts.
Kindly,
Fumi Urano
