Mrs. Stephanie Snow Gebel, my teammate and the driving force for our Wolfram syndrome research, gave a presentation on Wolfram syndrome and juvenile diabetes for 600 children yesterday. It was successful. She has been helping us raise awareness and raise funds for therapeutic development. It is important to raise awareness for the younger generation of rare diseases and other medical conditions. We will keep on raising awareness of Wolfram syndrome. We need HOPE to move forward.
Thank you for visiting this website. I am sending kind thoughts toward you.
Kindly,
Fumi Urano
